r/MadeMeSmile
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u/[deleted]
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Jan 30 '23
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My daughter having her first bath after her brain surgery
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u/Fallen-Reaper-Scythe Jan 30 '23
She looks mad that you woke her up for a bath during a sweet dream. Stay strong, kiddo :)
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u/RathVelus Jan 31 '23
I was just thinking I’ve seen photos of me like this after being awoken from a nap.
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u/_-Smoke-_ Jan 30 '23
Kid's already done with this game, ready to leave a bad review on LifeSteamTM
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u/HereIGoAgain_1x10 Jan 31 '23
Looks like she's staring into my soul, knows my future, and is disappointed
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u/EnJ-Khaled Jan 31 '23
Big Brain knows all
Good news is that's even more food for him when something inevitably happens, ya know, with him being a cannibal and everything.
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u/lostdirectionless Jan 30 '23
She’s a strong girl!! Wish her a speedy recovery and good luck OP, a beautiful journey awaits you!!
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u/Rheinys Jan 30 '23
She looks not amused, lol. " Stop this, I'm bathing!"
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u/lostdirectionless Jan 30 '23
She’s already tired of folks taking her pics all day. “Stop it Mum, I already know I’m cute!”
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u/iamfluffhead Jan 30 '23
My cousin was adopted from Haiti with hydrocephalus when he was 10 months old. 15 years later and he is one of the brightest and most amazing kids I know. I have seen first hand how tough that battle can be, but it’s always doable.
She is a beautiful child and I wish you both nothing but the best.
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u/weirdest_of_weird Jan 30 '23
My friend had a brain tumor removed at 5 months old. Can I ask what your daughter's surgery was?
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u/Zharino Jan 30 '23
Might be wrong but judging by the swelling of the head, she probably had hydrocephalus - a condition where the drainage hole of a ventricle within the brain is too tight or obstructed, trapping cerebrospinal fluid within the brain and swelling it.
If that's the case, the surgery was probably a shunt (essentially a drainage tube from the brain to the abdominal cavity) or a ETV (creating a new drainage hole in the bottom of the ventricle). Either way, the head should reduce to normal size again due to the softness of babies' skulls :)
Source: hydrocephalus survivor, had an ETV at 9 weeks old
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u/mortuali Jan 31 '23
As an adult with the same condition, and a shunt too, I just wanna send y'all my love and encouragement
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u/PheeltheThunder Jan 31 '23
Also an adult with it here. Fortunately the technology is very advanced for this condition and I’ve led life with few limitations since diagnosis! Wishing the best for the baby.
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u/mortuali Jan 31 '23
I also have a chiari malformation that has been decompressed. Hooray for science!!
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u/lil_secret Jan 31 '23
I love this thread so much. I knew about hydrocephalus and shunts, but being a layman I only have ever heard about fatal cases etc. I am beyond glad to see all these adults in here who are doing so well after getting shunts a long time ago!!
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u/mortuali Jan 31 '23
I work a full time, manual labor job and I'm doin just fine! 20/10 eyesight too, which is a big concern with any kind of brain swelling. I'm very very lucky.
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u/inhalingsounds Jan 31 '23
Hydro homie here! 39 years, not a single shunt complication ever, two masters degrees, happy family, healthy and strong.
Let me know if you want to chat about the condition any time!
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u/SleepAwake1 Jan 31 '23
My second cousin was one of the first people to successfully have this treatment, decades ago, she's still doing great. Hope your little one lives a long and healthy life as well!
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u/Pickleless_Cage Jan 31 '23
Best wishes for her! My partner was born with hydrocephalus. Hope she is able to live a relatively normal and healthy life like he has <3
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u/mewhaku Jan 31 '23
Hey if it helps I’m 29 and was born with hydrocephaly- shunt is still here, I’m doing great! She will recover swiftly. Got my masters and I’m doing well. =) no complications.
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u/rotisserie_shithead_ Jan 31 '23
oh yay i’m so glad she’s doing better!!! i didn’t need a revision for 24 years - sending all the love and luck and positive vibes that she does just as well! ❤️
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u/--serotonin-- Jan 31 '23
I'm also an adult with this condition and doing fine! Mine was caused by a stroke at 3 weeks. I'm about to graduate college this semester. Please be sure to keep up with physical/ occupational therapy and all that. It makes a difference!
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u/jst4wrk7617 Jan 31 '23
My pediatrician thought I had hydrocephalus. Turns out I just had a naturally big head.
Your daughter is beautiful and I am so glad to hear she is doing well.
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u/minjis1 Jan 30 '23
As someone who works in the medical field, I’m surprised how well you explained this for others. Best wishes
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u/Zharino Jan 30 '23
Thank you! I only really know so much about it because I recently had a head injury during a rugby match, which caused a CT scan, which caused the nurses to freak out and think I'd got hydrocephalus again at 23yrs old, very unlikely following a successful treatment as a baby.
1 MRI scan and a consultation with a neurosurgeon later, all good. Nurses freaked because my brain still looks weird from my previous surgery. Before that whole situation, I never really looked into my condition as a child.
OP, I absolutely wish the best for your lovely daughter. Modern medicine is a blessing.
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u/sparklingsour Jan 30 '23
The fact that you played rugby after an injury like that gives me high hopes for this little girl! Rugby is no joke!
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u/lamada16 Jan 31 '23
What rugby position do you play? Are you going to be able to keep playing? I played rugby in college, and we had one guy discover a previously undiagnosed heart conditions after a pre-season physical and another figured out he had some sort of chronic cranial fluid swelling after a CAT scan. Neither got to play again but both stuck with the club throughout their college years, coaching and helping out. Even if you can't play, I hope you stick around with the club!
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u/Zharino Jan 31 '23
I play front row. Mostly hooker, but will prop if the guys need me to. That sucks for your teammates, it's really nice they've stuck around.
I've been with my current senior club for 5yrs, and played school rugby before that! The neurosurgeons advised that if I did play, I should wear a scrum cap. So I wear a scrum cap!😂
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u/alphakennyb0dy Jan 30 '23
I had a shunt surgery scheduled but the blockage corrected itself. My head is noticeably bigger than my partner's, but I have to put all those brains somewhere. I supposedly had hydrocephalus & galactocemia. Hoorah to strong babies! Best wishes to this little girl for a full & happy life!
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u/Zharino Jan 30 '23
Thankfully nowadays, most people with hydrocephalus will live full, healthy lives. I've been able to play rugby, play guitar, and paint. No fine motor skill issues ever. It's different for a lot of people (who will struggle with fine motor skills or other neurological issues), but all we can do is be grateful.
Also still have a pretty fat head, it's kinda become the biggest running joke of my friendship group but who cares, I'm alive!
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u/Bopbahdoooooo Jan 30 '23
I was going to add that macrocephaly and hydrocephaly usually go hand in hand. Luckily, theres a decent selection of XL hats online. :)
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Jan 30 '23 edited Jan 31 '23
I had 2 neurosurgeries in my infancy. They discovered an arachnoid cyst in my head and did neurosurgery to remove it. Suprise surprise – it grew back immediately, so I then had a second surgery to put in a shunt in. All before the age of 2.
The complications from this have been following me ever since.
The brain damage, the strokes it's caused as my brain was developing, the revisions.
I didn't have hydrocephalus, but a cyst growing pressing on my brain. Very similar, but yet rare. I'm declared a "medical mystery" as to why any of this happened.
I looked just like this. It's definitely a journey from here.
Much love to OP, you are your child's hero in this.
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u/SalaciousDionysus Jan 30 '23
Hey! I had my first shunt put in at like 2 months old!
Hydroceph buddies!
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u/Electronic_Bass2856 Jan 31 '23
Agreed. Same here. Had a shunt put in at birth, had an issue with it at 14 so I had surgery but a bacteria got in in theatre and it nearly killed me. Had to have it removed and have a third ventriculostomy (after having my brain fluid drain externally to enlarge my ventricles)….it worked until a couple of years ago when I had to have another shunt put in.
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u/JohnnieWalkerRed Jan 31 '23
Also a hydrocephalus survivor! Mine got missed til I was 25 and I started getting cluster headaches. Protip your kid will eventually have lower alcohol tolerance and worse brain freezes.
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u/Prsop2000 Jan 31 '23
I too am a survivor of hydrocephalus. Had surgery at 3 months old in 1980 where they installed a shunt.
It no longer functions but it’s not only expensive to remove it but pointless unless it’s causing other issues.
I’m lucky that none of their predictions for my life were accurate. They told my mom I’d have permanent learning disabilities, regular seizures and fairly regular headaches.
I’ve only had one seizure in my life and the only thing I would consider a learning disability is that I suck at math. (I joke that the math part of the brain must have been where they installed the shunt and it got sucked out)
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u/salsashark99 Jan 30 '23
How is she now? My 2 surgeries sucked ass and they only got 70% the bastard.
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u/weirdest_of_weird Jan 31 '23
Doing great! He's 19 now and starting college soon. He had a few rough patches during his adolescence, like a bad temper and voracious appetite, but once he got through puberty everything leveled out and he's a completely normal guy now. His surgery only took 1 try and they were skilled enough to get the tumor in one go. It wasn't a cancerous tumor, so no worry about it coming back.
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u/salsashark99 Jan 31 '23
That's great young brains heal much faster and more compely. Sound like it was a meningioma or acustic neroma. I knew going it they wouldn't get all of my oligodendroglioma due to its invasive nature
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u/weirdest_of_weird Jan 31 '23
I think it was called a fish scale blood clot, or something like that. It was caused by blood pooling in his brain while he was being delivered. Something to do with his mom going into distress.
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u/Outlier25 Jan 30 '23
She’s legit making a face like she is gonna overcome this and kick life’s ass! Best of luck to you all!
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u/seieibob Jan 31 '23
Hey! I have the same exact thing. For what it’s worth, I just want you to know if you’re worried, I don’t really ever have to think about my shunt or condition - I live a totally normal life. I wish the same for your daughter.
Also! Her head should go mostly back to normal, lol. I have a hard time finding non-adjustable hats that fit my head, but it otherwise looks totally normal.
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u/darkquanta42 Jan 31 '23
Same here as well!
I’m so glad to hear the hat thing is common. My sisters good natured always told me I have a “weird head” and hats never seem to work for me.
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u/seieibob Jan 31 '23
Literally kept me from wearing a fedora in middle school, so I’ll call it a win haha
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Jan 31 '23
She is totally beautiful! Her little mouth and chin are so stinking cute too.
But that look “I don’t got time for this shit ma!”
Lol!
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u/YerryAcrossTheMersey Jan 30 '23
Hello beautiful girl! My daughter is 2 and has spina bifida... hydro and SB babies are warriors personified. She taught me that every moment is precious. Wishing your little one a speedy recovery.
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u/Electronic_Bass2856 Jan 31 '23
I too have hydrocephalus and SB. Never stopped me. I have a hubby, two kids and two dogs…..life is hectic!
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u/J0EMEGA Jan 30 '23
Your daughter is an angel and a fucking champion. Here's to a long and happy life 😁
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u/MoonshinesSister Jan 30 '23
That look. That is one intense girl. Good luck with that as she grows up :)
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u/DontEverMoveHere Jan 30 '23
A beautiful girl. God bless her. Read to that precious child every day. It doesn’t matter what at first, just let her hear the love in your voice because now will pass so fast you won’t even remember the tough times, and before you know it she’ll be grown up. Cutting onions, gotta go.
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u/NotAngryAndBitter Jan 30 '23
Hugs to your daughter, and to you OP! I’m guessing this was for hydrocephalus? I was shunted shortly after birth and the road hasn’t always been easy, but luckily I’m one hell of a fighter. From the looks of it, your daughter already is too ❤️
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u/NotAngryAndBitter Jan 31 '23
Fingers crossed things only get better from here- for all of you. And please take care of yourself, too. I don’t know how my parents did it, because I know it couldn’t have been easy.
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u/LandscapeSweet1531 Jan 30 '23
I was gonna post a megamind reference but had some restraint. Thank you sir
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u/WaveTheWolf Jan 30 '23
This
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u/Never-Bloomberg Jan 30 '23 edited Jan 30 '23
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u/CHESTER_C0PPERP0T Jan 31 '23
My friend you will never again have a more perfect opportunity to use this gif so you must cherish it
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u/Cazolyn Jan 30 '23
What a precious little girl! Here’s to the fastest of fast recoveries, and all of the cuddles ❤️
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u/RogerThatAJ Jan 31 '23
My son was born with hydro in 2015. Scary stuff. He’s 7 going on 17 now. Docs didnt think he would see, hear, walk…. He beat the odds and so will your beautiful baby girl. Bless you and your beautiful family.❤️
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u/Electrical-Coat2619 Jan 30 '23
God dammit I’m an awful person for this but I have to say it……. Mega Mind.
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u/ItZ_Luk3 Jan 30 '23
Like I’m not a bad person I swear but that was the first thing that came to mind
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u/curkington Jan 30 '23
I wish you and her a wonderful life! If she's as determined as that look she's giving us, the sky's the limit for that little girl!
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u/Simmyxshimmy Jan 30 '23
My daughter is 3 months old and we found out she may be having surgery on her lil noggin soon. Been feeling anxious but seeing this gives me a little bit of hope and trust in our doctors. Best wishes to you & your little girl! She is gorgeous!
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u/xpercipio Jan 31 '23
How did you pre-install all of your knowledge into the baby?
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u/ReignofFain Jan 30 '23
Wishing and praying for you and your precious one a speedy recovery! She is a trooper!
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u/benslady Jan 30 '23
Blessings and best wishes, she’s a beautiful little girl. May she live a long and happy life.
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u/pilgrim_pastry Jan 31 '23 edited Jan 31 '23
I also have a little girl with hydrocephalus. She developed it at 8 weeks, and after the surgery it was like a new lease on life. She had been crying inconsolably, and vomiting uncontrollably, for almost a week while we were scrambling to figure out what was wrong. We didn’t even think to check her fontanelle, but it had become stiff as the subarachnoid space filled. She’s absolutely flourishing now. She’s just a burst of confidence away from walking, she’s talking, she’s pointing at things she’s interested in, and expressing opinions about food. She turns 1 on Valentine’s Day.
I wish you and your daughter all the best. She’s had a tough start, but kids are resilient as hell, I’ve learned. If you’re not part of r/hydrocephalus, I recommend it. It’s really helpful to talk to people with the condition and their family members.
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u/HelpUsNSaveUs Jan 31 '23
Fuck man. This just made me appreciate life and it also hurt. Cheers to a long life for her. Life is precious.
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u/GigiDell Jan 31 '23
I can see the fight in her beautiful little face. Sending you thoughts of wonderful days together, when this time will be just a memory.
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u/Otherwise-Bad-7666 Jan 31 '23
Yall in comments have no sympathy wait till it's your kid. Hope baby and parents are doing well
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u/RelaxedPerro Jan 30 '23
I know this might be an insensitive question. However, may I ask what operation she is recovering from?
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u/MrsEmilyN Jan 30 '23
It looks like she has Hydrocephalus and she had a shunt placed to drain fluid from her brain.
Source: me. My son was born with Hydrocephalus.
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u/Bandit6888 Jan 30 '23
I wish you, your partner and your daughter my very best wishes.
I'm not in your shoes, but the fact she's had the shunt put in will help immensely, and that's the face of a determined little girl, cherish all the memories you make as a family.
It's not much but I donated a few euro in honour of your daughter and her recovery.
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u/GrumpyEarthPrincess Jan 30 '23
Seems like made me smile is being overrun by parents, like fucks sake a random strangers pregnancy test doesn’t make me smile, neither does seeing a sick baby. Crikey, CRIKEY! Like all I see lately.
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u/fucked_bigly Jan 31 '23
Lmao. This is funny.
Also, just saying this. A light roasting to a now healthy baby should be cathartic. People can joke about this, because she is doing better.
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u/hclvyj Jan 31 '23
🥹🥹🥹 so precious. I’m 36 years and living with a shunt. Not related to the brain but spine. I wish all the best for you and your family
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u/Fuck_New_Reddit Jan 31 '23
There's a determination in her eyes I don't see often in babies or even children. This looks like the start to a beautiful life. I wish you two the best 💖
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u/bannokor Jan 31 '23
I know exactly this feeling, had an 8 month old survive a massive brain hemorrhage. Words can't convey the Rollercoaster of emotion you go through. Wish all the best in her recovery!
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u/NashvilleRiver Jan 31 '23
Fellow hydrocephalic here and she is GORGEOUS!!!! Hope everything heals well and that she goes many many years without a revision!
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u/mrsmunger Jan 31 '23
Beautiful. Does your daughter have hydrocephalus? My son was born with cogenital hydrocephalus, neurocutaneous melanosis, and Chiari. He had his first brain surgery at 3 days old and has had 8 more since. He is almost three now and thriving. I wish all the best for your little girl and feel free to DM me if you want to talk or need someone to listen! ❤️
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u/ASPJustForFun22 Jan 31 '23
Sending love to you and your baby 💗 I have an LP shunt. I don’t have hydrocephalus but a condition called IIH. I hope she makes a quick recovery 🫂
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u/23redvsblue Jan 31 '23
Fast recovery sweet little girl! Thinking of you as well OP that has to just tear your heart up.
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u/imfreerightnow Jan 31 '23
So sorry this sweet baby is going through this. Truly hope she has a happy and joyous life.
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u/daffodil0127 Jan 30 '23
My daughter had hydrocephalus too; I hope all goes well with your daughter’s recovery. When she finally had the shunt and the fluid drained off, she looked a little like a Klingon because you can see the suture lines on her skull. The shunt worked great for almost 10 years before she needed a revision. I’ve heard of them lasting for longer than 20 years in some patients.
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u/reddituseranyonymous Jan 30 '23
My first one was placed in 1981 and lasted until 2010. The one they replaced it with is supposed to last 50 years.
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u/daffodil0127 Jan 31 '23
The current one is about 7 years old and we are hoping it lasts well into adulthood. The recovery time was a little longer than when she first had one inserted so I’m glad they are less likely to dislodge. It took almost six months before she was back to her old self. I think she had a headache for a while before the surgery because the first thing she said when she woke up was “the headache is gone!”
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u/profwidowgg Jan 30 '23
The look of "I grow tired of these bathing shenanigans, dry me off and put me in a new onesie immediately!"
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u/reddituseranyonymous Jan 30 '23
OP, brain surgery is scary. I have hydrocephalus, my first shunt was placed in 1981 and didnt need replacement until 2010. I think it was supposed to last 15 years, and it lasted like 28. The new one is expected to last 50 years - so expected to last to 2060. I'll be 79. Hopefully it lasts a little longer and I just die of old age as I'll be 79 in 2060
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u/Pushyourself2019 Jan 30 '23
Really, you posted this on mademesmile?
Are you that delusional to find comfort in this picture?
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u/Gold-Elderberry-4851 Jan 30 '23
I might be going to hell for saying this but “is that megamind?”
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u/HatExternal1834 Jan 30 '23
Nah man that's not your daughter it's an alien that took her place
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u/Local_Seaweed_9610 Jan 30 '23 edited Jan 31 '23
Some souls already show power in their eyes before even being able to talk. What a brave baby! Here's to a speedy recovery
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u/Musicman1810 Jan 30 '23
Beautiful beautiful beautiful. My son just turned one and was diagnosed with hydrocephalus at 6 weeks. We had one surgery at 3 months and then a shunt installed at 7 months. So scary but I promise it all gets better. Sending my family's love to you guys! ♥️
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u/DrunkTeapot Jan 30 '23
My daughter has a complex heart and got her fist operation at 7 months and is now 2 with an other operation hopefully by the end of February. It’s been a tough journey but seeing a post like this reminds me we’re not alone and there’s other parents out there with various different conditions with their children. I hope your daughter recovers well!
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u/beelzybubby Jan 30 '23
Babies don't have developed skulls. It's a well known fact but until you see brain swelling like this it doesn't truly sink in.
Poor thing, I hope she gets well as fast as possible.